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I feel like this deserves it's own entry. Reply to vampirewitch39:

I have to say I love her care team. All of them are a perfect fit for her! It's amazing the energy they all have. =) We've also started going to an autism support group... one where the autistic individuals have their own meeting while the parents have their own. That's been an amazing, welcoming experience!! The woman who runs it is so awesome that she's coming to my kiddo's IEP meeting next week. =D She's an advocate who fights hard.

I feel bad because I had been looking for people to help my kiddo but we live in a small area and I didn't know who all could or would help. I finally got the ball rolling in February and well, the judge who saw my daughter asked me if she had ever been tested for autism. I started crying in court... someone else was seeing it too! It wasn't just in my head! He legit put it in court orders for her to get tested and I couldn't be more thankful because people who didn't want to test her finally had to listen or get the backlash.

She is also certified for the Board of Developmental Disabilities now. I've explained to her how important keeping up with the Board is important because they will help her for the rest of her life. She just has to keep up with appointments every 6 months to keep up the status of being certified.

Like I told her, whatever comes our way, we'll face it together. If I can't help, I'll find someone who can and will at this point. I've been trying to keep a directory of sorts of people and their capabilities available if something were to happen to me. Like I told her, I can't promise nothing will happen to me because of my eosinophilic asthma. I've actually had her make some phone calls herself to people to see if she could do it. She was so damn proud of herself cause she did! I've explained to her that if I'm not around, she needs to be able to communicate what she needs and/or wants to her team and be able to call them with the communications.

I'm so proud of how far we've come together. I'm so proud of how far she has come!

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Vampirewitch39
19:18 Nov 03 2023

Oh honey...I'm so glad the judge step up, got the ball rolling. My best friend son has autism, my older brother was classified as mentally retarded . I understand the frustration of not getting help. Best wishes!

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Yayness! So parenting classes for special needs and behaviors just opened up near me and they are paid through the Board of Developmental Disabilities. I'm so trying to rework my work schedule and appointments so I can take the 3 month course to help me with my kiddo.

I think the best thing that happened was for the law to become involved in our lives because since then, she's gotten so much help. She finally got diagnosed with autism spectrum disorder and we found out her IQ and everything. Not to mention all the help she's been getting through the different agencies.

The only downside is I have to keep up with all the agencies and appointments. There for a while, we had about 6-8 appointments a week between the two of us. It was INSANE to say the least! Not to mention the at home therapy program she was in was up to 6 hours a week which was a lot of those appointments. O_O

As far as the autism diagnosis goes, I'm so frustrated. She's 15 years old, about to be 16 in 2 weeks, and she was just diagnosed in March of this year. I'm so angry. I've been pushing for her to be tested by the school and a couple of her past therapy/psych places but none of them saw the need to test her. But when we go out of the area for appointments and what not (to the bigger cities around us ie Morgantown, Pittsburgh, and even Cleveland), they want to know why she wasn't diagnosed before now and had early intervention. They tend to look at me like I'm crazy because I'm like "well, yeah, I tried and have been saying she probably was since she was around 3 years old. But what do I know as her mother?"

Now moving forward, I don't know how to feel. I feel like she was robbed of early help and intervention services. I feel like she could be in such a better place if she would have received those. Thank goodness she doesn't see it like that... she sees it as all the help she's getting now.

...Maybe I should take a page out of her book. I just got to figure out how to stop being so angry about such a late diagnosis first before anything. At least things are starting to make sense now in our world. The quirks. The tantrums. The sensory issues. The episodes of rage here and there. We're getting help for it all now and more.

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Vampirewitch39
00:47 Nov 03 2023

Glad to hear you both are being helped now. Advocate might be something to look for as well.

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Today went pretty good. I'm at least happy my kiddo got to see her dad, we played Monopoly, ate out together and then went trick or treating.

My only complaint can really be that I'm hurting from my endometrial ablation I had on the 19th. They think I have an infection going on. It would be nice to know for sure but I was told they can't do anything in office this soon as it might cause tearing if I'm not healed enough. On my second antibiotic though. My back, sides and extreme lower belly keeps cramping insanely.

I'm about to put on scary movies and get some sleep. Hopefully I'll wake up feeling better.

Night everyone and happy Halloween!! ♥

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dwaynemcgriff01
21:32 Nov 01 2023

I'm sorry that you are or been hurting. I hope that your pain goes away soon and you heal up perfectly and so you don't have to worry or stress your self about it. And I'm happy that you was able to have a good day with your kids and Halloween.

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DireConsequences
21:47 Nov 01 2023

Thank you hun. I'm a tough cookie as long as I get to complain. If I don't get over the infection, they're talking IV antibiotics. I'm freaking out a little. The antibiotics I'm on now better work!

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