01:50 May 22 2012
Times Read: 650
*****WARNING: RANT AHEAD*****
I had joined a group on facebook, for MS. As far as I knew, it was a place where you could talk about your experiences with MS and the drugs that they use to treat it.
I seemed to realize that I wasn't really accepted into this group, when they started trashing Ann Romney for her statement, "I have MS but MS doesn't have me".
They were pissed. They felt she was minimizing her MS and basically telling people there was no big deal with MS. I tried to be a voice of reason and explained, that for years, Ann Romney had fatigue, spasms and had trouble walking until she decided to do something about it. The injectible medications didn't work for her. So, she
worked with a doctor and a nutritionist and they put together a plan that works for her. She eats a specific diet, which is suppose to be an anti-inflammatory diet. She does yoga and stretching. She uses alternative medicines, such as horseback riding and cranial massage. I explained that she stated in several interviews, that she hated that MS controlled her every thought and movement and wanted to break away from that.
I explained all this to them, explained that I respected her for what she did and explaining it. That I feel I am the same way, as I don't want my MS to rule me. I saw what it did to my Mom and I want something more.
I was told that I am controversial, for posting my thoughts and feeling about this. That I alienated the other members, because of my post.
Today, someone posted that she had heard that Vitamin D, is not good for anyone in the long run and especially bad for people with MS. I simply posted that there is a lot of information out there, both good and bad. If the person had a question....then they should bring it to their doctor, to get their take.
I was blasted because I was starting a fight. How the hell have I done that, with stating you should talk to your doctor, not listen to everything on the internet.
Apparently, I am wrong to feel that my MS or any disease shouldn't dictate your life and I don't fit into this group because of that. No problem. I left the group and deleted that "friend". I don't need someone to tell me, that I am not feeling bad enough about my MS for them. Sorry but F*CK YOU!!
/rant
COMMENTS
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RedQueen
02:00 May 22 2012
*chuckling* This sounds so familiar. When Jim wenbt overseas for Desert Storm, in 1990-91, he insisted I go to the wive's support group meetings, so I agreed to go. It took about fifteen minutes of listening to whiney women bitch about the following:
Who's going to cut my grass?
Who's going to put air in my tires?
who's going to check my oil?
Etc., etc., ad naseum.
I leaned over to the guy who had brought me, and said "We're leaving"
We stood up, and the Colonel running the group stopped and insisted that the meeting wasn't over, and I should sit back down. I told him in no uncertain terms that if I wanted to listen to a bunch of women whine about shit they could do for themselves, I'd stay. But since I could do and had done all the things they were whining about, I didn't see much reason in staying. And I left. Never went to another one. And damn glad I didn't. And personally, if a bunch of whiney bitches can't get the meaning of "I have MS but it doesn't have me" they deserve whatever they get.
Xzavier
02:55 May 22 2012
That is beyond disgusting. Anyone with any disease should strive to "own" it, not the other way around. Having a disability is something I've tried very hard to conquer and I can't wait until the day I can say, "I have ASN, but ASN doesn't have me!"
Lullaby
13:19 May 22 2012
... It seems like they want everything to be done for them - that they don't want to take the initiative and do things for themselves, because "Poor me, I'm sick."
I think your view is amazing - I had something similar a few years ago (view wise) when I fell ill - it makes all the difference in the world - literally.
Having a decent mindset makes so much difference.
Kudos.♥
DarkMuse
21:54 Sep 10 2012
It sounds like you were trying to be informative,
and some of the others just wanted to be assholes.
I t sounds like you gave some good information, and then telling them to talk with a doctor..damn, how much nicer can someone be. Some people just like drama. I wish you well in dealing with your MS...blessings to you:).