Today, 43 years ago, my Oma (grandma in German for those who don't know) gave birth to and lost her baby girl. She was my mom's younger sister by about a year, and was not carried to term. My Oma was in labor for a while and by the time my aunt got here, it was a dry birth. She was born blue and had no oxygen. She died two and a half hours later. Her name is Rebecca Sue. Oma was going to name her something different, but knowing that she died, she didn't in case she had another girl after that. She didn't. She had a boy instead.
But today marks a day where my Oma had to be very strong not only for herself, but to the other little girl she already had, my mother. To this day, my Oma remains one of the strongest and most compassionate people I know.
Happy Birthday Aunt Rebecca. Even though I never got to meet you, I still love you. Rest in Peace. Love, Briana ♥
Well, found out today that what I was diagnosed with isn't as rare as we thought, just a little less known.
I was diagnosed late last year with abdominal migraines/abdominal epilepsy. Since then, I've met or heard about 5 other people that have it. My grandmother researched it and there is a whole website about it and people that have it. So now I don't feel so alone in this. I just wish I knew someone who has gone through it or is going through it that I could talk to and they would understand.
It's very hard to explain what abdominal migraines are like. As much as I try to explain it to someone, they just don't understand what I have to go through everyday. When I say I feel sick, people who know me well don't really think anything of it because I say it everyday. With abdominal migraines, I have a constant nauseous feeling and a constant cramping feeling in my stomach.
There are certain foods that I love that I can't eat anymore because they trigger the severe abdominal migraines, which can turn into the abdominal epilepsy for me at that point) I can no longer eat Chinese food (totally sucks because I love Chinese food) I can't eat spicy foods such as chili or tacos with taco sauce, I can't eat a lot of chocolate, etc. If I do eat these foods, I get really sick and end up vomiting. So I tend to stay away from foods that I've never tried before or foods that I know will make me sick and even ones that may or may not make me sick.
Living with this isn't easy. I can't go out with my friends when I want because stress also triggers the migraines, even good stress. When I was younger, going to a birthday would make me sick because I was excited and that's good stress.
I wish more people understood what I was going through so they could have a better understanding of me. But I guess until further research is done with my diagnoses, I'll have to wait for people to understand.
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I've got regular migraines (even caused some lesions on my brain). On top I have Autonomic Sensory Neuropathy which wreaks havoc on my GI system at times so between the 2 I think I can imagine how that feels.
I've known about abdominal migraines for a few years, never knew of anyone having them. Hang in there *hugs*
I really wish the best for you.Hopefully soon they will find ways to help those with this problem.
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