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Okay so I told all of my coven mates that I would explain what is going on with me lately. Most of you who know me already know I suffer from SLE (lupus). Well I went to the rhuematologist for the first time in several years. (Thanks to no insurance before, I couldn't see one until after getting on disability.) I always prepare myself for bad news because that is what I usually get. It is better to be prepared than be suprised and flip out right there and then.



Anyway, when the doctor came in she gave me the usual crap about it not showing up on my tests. (Some doctors will only use the diagnosis of lupus if the tests come back positive every time. The problem with that? False negatives are very common with lupus patients.) She did feel some of my joints, which almost all made me flinch. That was pretty much all she did. All of the points are tender spots of fibromyalgia. So now not only do I have lupus and vasculitis, but i now have fibromyalgia as well. Lucky me....



I went back again today and she still wont do anything for all the symptoms I am having because the tests are not off the charts. She wouldn't even listen to my symptoms which pissed me off. Every other rhuematologist has listened to my symptoms. If I had symptoms and the tests came back negative, they still treated the symptoms because obviously something isn't right. I am in pain all the time. I am also always tired, usually have a headache and dizziness, and my stomach is always upset. Sadly she wont do anything about it or listen to me. I am going to call and make an appointment saying all I want to do is talk to her because I am frustrated and depressed at this point. Maybe I can talk some sense into her. If not, well, I'll need a new doctor.



So that is what has been going on with me. I have yet another chronic illness and because of that and the way the doctor is treating me (or not treating me really) I am frustrated and depressed. I have spent the past few days trying not to lose my mind or have a nervous break down. It just sucks when you can't seem to catch a break and right now, I can't.



Sorry I haven't been on much guys, but as you can see, my life outside of VR sucks right now. :( All I want is to not be in pain constantly and not be tired and sick constantly. Is that really so much to ask? *sigh*

COMMENTS

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Sinora
14:13 Jul 09 2009

No, it's not too much to ask, personally I would start looking for a new doc..*hugs*.

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AMurderOfSin
11:13 Jul 10 2009

sorry to hear about your bad news..

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Doru
16:16 Jul 11 2009

Sorry to hear the news, but I would still see another doctor.

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therealthing
23:46 Sep 18 2009

I have many come see me for various reasons, one is a friend came to me with Lupus. She is feeling better now. Here are a few suggestions :

Just eat right, sleep right, avoid stress and manage it when it happens, be optimistic, mind or matter. Surround yourself with higher and deeper thoughts that have meaning, instead of worrying too much. It is a proven fact that can magnify the illness. There is much you can do, these are only a few suggestions.

Also, a regiment of herbs goes well too; that I will share with you if would like. My door is open.

Love Ya

Hugs

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