I finally got a county doctor who will treat me for my Lupus. Maybe soon I won't be in pain and so tired any more. Well, not in as much pain or quite as tired anyway. I'll take even a small improvement at this point. I have completely forgotten what it is like to not be in pain. I know that sounds outrageous, but it's true. I got in the habit of telling people that the pain reminds me I am still alive. Crappy way to remember huh? I also had my court date. I don't know yet what the verdict is on whether or not I will finally get disability. I am just really hoping it is yes. I don't know how much more extra fight I have in me. I have to fight the disease so I don't need to have to fight the government too.
Lately I have been having a pretty bad flare up. (That means the Lupus is acting up worse and attacking my body more than it normally does.) I have been taking the new meds for a week but they don't seem to be working yet. As always, according to the doctor, one week is not long enough to tell if it will work. So now, I find myself playing the waiting game. Ugh.
Okay, so I have two doctor's appointments coming up. One is today. I have to have a full evaluation for my disability court date on the 21st. Sadly, the county doctors pay no real attention to the fact that I have Lupus, so they can't do it. WHich brings me to my second appointment. I have another one on Thrusday with the county doctor. I already know they will not treat my Lupus. They have told me a thousand times. Maybe they can do something about my jaw though. I woke up this morning and had horrible pain in the right side of my jaw. I clench my jaw all the time without even thinking about it or knowing that I am doing it, so it is probably because of that. I just want them to make it stop. I can hardly eat with it like this. Anyway, I am done ranting for the moment.
COMMENTS
I hope all goes well for you.
Tell us all!
:S
No you are not ranting you are reasonably addressing concerns for your health, you are not ranting in my book.
COMMENTS
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Sinora
16:28 Apr 26 2008
Yes I know it's hard, the waiting game...thinking of you. *hugs*
Dragonrouge
16:38 Apr 30 2008
Just hang on there!
If you can hope, nothing is lost.
dabbler
00:23 Jun 09 2008
I am Stoked for you.