She is still just as sick as she was two weeks ago. Her pain at times is unbearable. The amount of meds she is on is incredible..if I wasnt a nurse, they wouldnt allow her to be home on the amount of narcs she is taking
and they have no fucking clue what is wrong with her... none~nada~
they have ruled out a ton of shit... from cancer to valley fever...lupus to rheumatoid arthritis...
cant get her in to see the pain management dr for 3 1/2 weeks!!!! both pediatrician and rheumatologist says they will see her in 2 weeks
what the fuck.. so i just keep her heavily sedated for the next two weeks??? how does that do anything??
bangs head here
Valley Fever?!?!
The not knowing of what is wrong with your child has to be one of the most painful moments in my life. The awareness that I remove other ppls pain for a living and cannot relieve hers, is a horrific realization. She is on doses of narcs that should tranquilize a rhino. and she still crys out in pain.
COMMENTS
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birra
00:23 Feb 13 2009
:(
Jamie
07:42 Feb 22 2009
Wow, I am so sorry to hear that. I am here for you. If I can help you let me know. I can help look for information online. I am good at that.
I will send light and energy to her when I can.
*hugs* to you both